On the road again...

Another successful trip to Portland

 

Last Thursday we headed to Portland so Kyle could see his lymph edema bandaging PT. Her name is Mary. Kyle has brought several challenges and firsts for Mary, on our last trip Mary stated that Kyle was her first patient to wrap his legs around her arms while she was bandaging him. Kyle is the first baby with lymph edema that she has seem, she usually sees adults with this diagnosis. She has been contacting people all over the country trying to help us help  Kyle with his lymph edema.

This visit Mary helped us work on how to keep the bandages on Kyle for longer. We are aiming for 3 hours, and usually he was pulling them off or they were just coming off from him crawling and playing after about an hour. Also we were not seeing a lot of difference in the size of Kyle's hands, so now we are doing a modified almost baby proof double wrap. It uses twice as much wrap, and we added tape. It takes me almost twice as long to do and that part Kyle is not really impressed with, what almost 10 month old likes to sit still for 20 min. while his mom wraps his hands up. But other than the sitting still he is still not bothered by them and keeps playing just like when he does not have them on. I am also trying to increase the amount of lymph massage I do with Kyle everyday. He really enjoyed the pool at the hotel (which is good for his edema), hopefully where ever we end up moving will have an indoor pool that we can use a few times a week for therapy. The other first for Mary was watching Kyle take his bandages off with his teeth, he finds it very assuming to bite and pull at them, the tape is helping with this. So here is my first time doing the new wrap, luckily Wade was home and helped hold, today I got to do it alone, but I am getting faster, but of course so is Kyle.



 

 

Lucy got to go on this Portland trip with us, she was very excited to stay at the hotel, swim in the pool and play with Mommy, Daddy and baby Kyle.

Here they are getting ready to do go down to the pool. Lucy loved to go back and forth between the hot tub and the pool. Finally on our 3rd time to the pool I convinced her that once Mommy goes into the hot tub Mommy does not want to go back into the "cold pool". Kyle also loves to splash in the water and watch other kids, including his sister in the pool. We definitely have 4 water babies.

Always on the go!

I got to choose where we ate lunch, we have never eaten at the cheesecake factory so that is where I picked. It was fun, their menu is HUGE so it was really hard to pick. After lunch we ordered cheesecake to go, and ended up having it for dinner that night :)

It looks like we will get a few weeks to stay home, YEAH! Our next appointments up in Portland are not for about 4 weeks:)

Thank you for the prayers for Kyle and our family. Please pray for patience as we wait to find out where we are moving with the coast guard this summer. And that God will hand pick the perfect doctors for Kyle, and the right place for our family to call home for a while.