This week the kids and I have been doing vacation bible school at our church, this whole week is on "trusting God" and I think it is probably way more for me than the kids.
It has been a faith testing month, or so, and I am constantly reminded that I/we need to trust him in all that is going on, even when it all just seems out of control.
After leaving messages and playing phone tag for a week in a half I finally spoke with Kyle's vascular doctor regarding his test results from the lymphancentography. They rate things on a scale of 0-45, 0 being totally normal and 45 the worse. He said Kyle scored a 45 in his upper body, the tracers never even left his hands in the 2 hours+ that they were watching. This was somewhat what we expected, but were hoping for some function. But the surprise was that he also has moderate lymphedema in his left leg and mild in his right, even though they are not showing swelling at this time. He said with that we will just wait and see, but ended saying it is everywhere in his little body. His little lymphatic system just did not develop the way it was suppose too. We go see him the end of July, but really right now we just keep doing what we are doing, garments during the day, massage and wrapping at night, and trying to get to the pool as much as possible, and most of all trying to trust God that he has a plan in all of this, that he knit Kyle together and knows him best of anyone, and loves him even more than we do, which is hardest to fathom.
Josh is having his eye surgery Monday, we will find out what time on Friday. This is the same eye surgery he had at 4, to realign muscles, but 10-20% have to be revised and he fell in that percentage. He seems to be doing ok with it, he is very bummed he will not be able to swim for 3 weeks after. It will be an out patient procedure at the main campus downtown.
The house is still all torn apart, and our room/ bathroom sealed off. We are trying to get something going but everyone wants someone else to start. We are trying to get the "chemist" to come out and tell us the extent and what kind of mold we are dealing with, then they come up with a plan for the mold remediation company and the water damage company. But on top of that we are coordinating with a roofing company to come and take care of the roof first. We need a whole new roof. We got our first quote on the roof the other day, but are waiting for another before we decide which company to use (our insurance company is saying the roof is not storm related just was not put on right in the first place. So that is all ours to deal with). I am very ready to just have that all done and dealt with.
Wade has been working on a fence around our yard and it is coming together. He got all the posts up the other day! I am very excited about the fence, hopefully it will keep deer out of my garden, and kids in the yard, and let the dogs run more too!
Talking about gardens and kids here are some pictures of our week.
VBS- this is the kinder/first grade group
Wade putting up the fence posts
The boys helping
Relaxing with Daddy after a hard days work
The mayfly invasion started today and they are everywhere!
They are shedding their skin, so it is like they are multiplying
The darker is just skin, and the top is the mayfly all emerged
My garden
More garden, it is fun having a growing season again
That is all for tonight, thanks for checking in on us :-)
