Hanging out

Kyle had a pretty good night. About midnight I could tell his breathing was getting better and his tummy was not as distended. We slept curled up in his hospital bed together, he did not want me getting to far away, I had to bargin with him for bathroom privileges, (the bathroom is about 4 feet from his bed).

Today we are getting another albuim infusion, a chest X-ray and we just got a breathing treatment. 

He really likes the TV while in bed thing. 

We have been reading books and snuggling our babies in bed, he still loves his "seamore" the seahorse to snuggle with at night. It has done hospital time with us for years. I can remember it in his crib in Portland. Thank you Auntie Marcy that special gift that he has loved for years. 

The plan is still to go home later today after we finish this infusion and the diuretics after. Thank you for the prayers. It is always hard to be so far form our family and friends that support us and love us, at times like this it almost feels unbearable, but we are thankful for technology to make us feel closer and for the wonderful team of doctors and nurses that we have here. But most of all we are thankful for your prayers they are they only thing that has kept us going these last 5+weeks. Tears still come, sometimes often but we feel the comfort that can only come from our Heavenly Father. I was reading Psalm 86 this morning and I am so thankful for his steadfast love and that he hears us when we call out to him. 

For you O Lord are good and forgiving abounding in steadfast love to all who call upon your name. Psalm 86:5